[bksvol-discuss] Fwfrom Cindy : From Daria/Dasha more answers to questions I asked off list
- From: Cindy <popularplace@xxxxxxxxx>
- To: "bksvol-discuss@xxxxxxxxxxxxx" <bksvol-discuss@xxxxxxxxxxxxx>
- Date: Fri, 8 Jun 2012 00:32:43 -0700 (PDT)
----- Forwarded Message -----
> From: Dasha Radford <dasha95@xxxxxxxxx>
> To: Cindy <popularplace@xxxxxxxxx>
> Cc:
> Sent: Tuesday, June 5, 2012 7:50 PM
> Subject: Re: more questions
>
> I was never in full remission. It's only been five months since my diagnosis
> and as a result they have to do bone marrow biopsies about every three months
> or
> so. And then once I am in full remission rather than just a partial blood
> related remission they can use something called a PCR test to check it at the
> molecular level again at least for the first year about every three months.
> No I
> dictate most of what I do and any case. It works better and sure if you were
> so
> inclined we could certainly try some word games by email. I have not done
> much
> with jigsaws but that might be fun. I'm at home and most of what I do is
> outpatient but I'm in and out in terms of outpatient visits a great deal. I
> was born in a city about 80 miles from the European Asiatic border so fairly
> close though not as close as some. Nizhni tagil is the name of the city.
>
> Sent from my iPhone
>
> On Jun 5, 2012, at 10:34 PM, Cindy <popularplace@xxxxxxxxx> wrote:
>
>> Wheere in Russia were you born? (I did think Dasha sounded Russian); near
> Chernobyl?
>> Oh, how I hope (not as much as you do, I'm sure) that the July biopsy
> shows you are in remission! How long did your last remission last, and are
> you
> able to live a normal life when in remission? and once you're in remission,
> when do they have to test again?
>>
>> Does answering emails or writing tire you out? Maybe I can think of some
> games to play with you, like Hangman.
>> Do you like doing jigsaw puzzles? There is a nice jigsaw puzzle site online
> I can send you. I was doing some to improve my hand-eye coordination after my
> small stroke. There are also online crossword puzzles if you like doing those.
>>
>> Cindy
>>
>> ----- Original Message -----
>>> From: Dasha Radford <dasha95@xxxxxxxxx>
>>> To: Cindy <popularplace@xxxxxxxxx>
>>> Cc:
>>> Sent: Tuesday, June 5, 2012 4:27 PM
>>> Subject: Re: more questions
>>>
>>> Well okay that works kind of like grandma be at our church and real
> name is
>>> Beatrice but we just started calling Haraby or grandma be. I'm in
> Raleigh
>>> but I'm oftentimes in clinic at UNC Chapel Hill. I don't do a
> lot of
>>> inpatient visits anymore in fact I haven't done a truly inpatient
> visit
>>> since I went in in early January and came out about a week or so later.
> It's
>>> no point to it. In Russia they can't do a whole lot about it where
> I was
>>> born there was a lot of heavy metal work and the like. They started
> trying to
>>> work with it in 93 but there's only so much they can do.
>>> You may not like me for saying this but just as we children can't
> understand
>>> what parents feel or those of us you aren't parents are so just so
> the
>>> parents can't understand what we go through. Sometimes it's a
>>> combination of denial and so on. And the stress of the procedures is
> incredible
>>> as much for us as it is for them. Most of the side effects I deal with
> are
>>> mostly blood related. Low white blood cell counts low hemoglobin levels
> and bone
>>> and marrow biopsy for me in July to determine whether I'm in
> remission. Oh I
>>> forgot to mention with the blood side effects we may also have low red
> cell
>>> counts and platelet counts that my platelets and such are fine.
> It's just my
>>> white blood cell counts and hemoglobin levels that are low. But
> that's no
>>> surprise since that's the chemo. I usually run around 3.0 on white
> blood
>>> cell count which is now my "normal".
>>>
>>> Sent from my iPhone
>>>
>>> On Jun 5, 2012, at 6:59 PM, Cindy <popularplace@xxxxxxxxx> wrote:
>>>
>>>> Hi, Daria, it's me. ,Cindy, again.
>>>>
>>>> I'm sometimes known as Grandma Cindy (because at one point
> there were
>>> so many Cindy's on the list and one, (not on now) said some
> unpleasant
>>> things with which neither I nor others appreciated and with which I
> didn't
>>> want to be associated.
>>>>
>>>> I wanted to ask where youlive and what hospital you're in. My
> daughter
>>> is a pediatrician and if you happen to be in one of her hospitals she
> could pay
>>> you a visit and be sure all is going well.
>>>> My other daughter is an attorney, and if it is found that some of
> your
>>> problems stem from that waste dump location in which you were born (
> and
>>> raised? I'm sure her firm would be happy to sue on your behalf,
> though
>>> probably a class action suit has probably beenfiled, and perhaps even
> concluded,
>>> on behalf of residents of the town or wherever. My heart goes not only
> to you
>>> but to your parents. I doubt a child, or anyone who is not a parent,
> can
>>> understand the pain that parents feel when a child suffers and there is
> nothing
>>> the parent can do to take away the sufferering or pain, and has,in a
> case such
>>> as yours, to put on a brave and cheerful face.
>>>> Cindy
>>>>
>>>
>
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