Constellation Talk - Battens disease

  • From: Maria Dolenc <mariadolenc@xxxxxxxxxxxxxxx>
  • To: ConstellationTalk@xxxxxxxxxxxxxxx
  • Date: Wed, 2 Oct 2013 15:37:23 +1000

Dear Constellation Community.

I'm wondering if any of you have had any experience with Battens disease (CNL2). I have a client whose 4 year old Granddaughter was diagnosed with this disease a year ago and is already in a wheelchair. Battens disease is a rare degenerative disease which means that the child could die before she reaches 8 years old.

I would greatly appreciate any suggestions or insights that may help me to work with my client systemically

Many thanks
Cheers Maria


Maria Dolenc
0425 277 279
mariadolenc@xxxxxxxxxxxxxxx
www.mariadolenc.com.au





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