[bksvol-discuss] Re: Just a thank you
- From: "Sue Stevens" <siss52@xxxxxxxxxxxx>
- To: <bksvol-discuss@xxxxxxxxxxxxx>
- Date: Tue, 5 Jun 2012 08:30:45 -0500
Dasha,
I am very sorry to hear this. You will be in my thoughts and prayers.
Sue S.
From: Dasha Radford
Sent: Tuesday, June 05, 2012 7:24 AM
To: bksvol-discuss@xxxxxxxxxxxxx
Subject: [bksvol-discuss] Re: Just a thank you
Cindy,
I'm 16 as of last September. Diagnosed January 6, 2012 tomorrow will be five
months since I went into the hospital and about the week after that will be
when I was able to finally leave the hospital. I have chronic myeloid Leukemia.
As the name implies it is indeed chronic. Most of the time we've referred to it
as CML. I am one of about 3.5% of all childhood leukemia cases with it. I was
diagnosed in January of this year as I said earlier and I only take one drug
something called sprycel. This is a targeted chemotherapy. Rather than one of
the broad spectrum chemotherapeutic drugs that have some more obvious side
effects such as hair loss and the like. With this type of leukemia I can not
achieve a cure but can achieve remission I'm already ahead of schedule
Quite frankly I would like to see more historical fiction and fantasy books in
there in the collection. It's rather interesting also to note that a lot of
people who proofread/submit the books oftentimes don't put whether it belongs
to the series even if it does. And it's also very difficult to look through the
whole listing to try to figure out what belongs together if they're not already
together.
Sent from my iPhone
On Jun 5, 2012, at 3:47 AM, Cindy <popularplace@xxxxxxxxx> wrote:
Dasha, so sorry to hear that you have leukemia. As difficult as the treatment
and testing that you're getting is I hope that it results in a cure or
remission. How old are you? Are there enough books in the collection that
interest you? There are people who enjoy scanning books for children and/or
teens and preteens and I and some other really like proofing them.
Wishing you all the best.
Cindy
----------------------------------------------------------------------------
From: Dasha Radford <dasha95@xxxxxxxxx>
To: "bksvol-discuss@xxxxxxxxxxxxx" <bksvol-discuss@xxxxxxxxxxxxx>
Sent: Monday, June 4, 2012 9:32 AM
Subject: [bksvol-discuss] Re: Just a thank you
TVs in hospitals. Boreing! Particularly on the pediatric ward. All you
could get was music and news. And right at that point I needed something that
was a whole lot worse than what I was going through to even put mine into
perspective considering the way I was told. I'm in and out more now I've only
had that one week. But that one week was the longest of my life. Bookshare and
NLS have kept me in reading material since the leukemia diagnosis. It's funny
in the hospital now going between seeing a Dr. reading talking to another
person reading and then finally leaving about three or four hours later. Seeing
so many doctors my first and hopefully only week in the hospital on the
inpatient pediatric cancer ward got to be more than a little bit mind numbing
after while believe me.
DR
Sent from my iPhone
On Jun 4, 2012, at 12:21 PM, "Dornetta" <dornetta@xxxxxxxxx> wrote:
> Dasha,
> I completely understand what you are saying. When I first lost my sight
and
> was in the hospital for long stretches of time, I knew nothing about
> bookshare and therefore was forced to look or in my case listen to TV
which
> was so mind numbing!! Oh how it would have been so much nicer if I could
> have read a book that I enjoyed...NLS provided some relief but the
selection
> was from a random list.
> Netta
> "Our deepest fear is not that we are inadequate. Our deepest fear is that
we
> are powerful beyond measure. It is our light, not our darkness that most
> frightens us. We ask ourselves, Who am I to be brilliant, gorgeous,
> talented, fabulous? Actually, who are you not to be? You are a child of
God.
> Your playing small does not serve the world. There is nothing enlightened
> about shrinking so that other people won't feel insecure around you. We
are
> all meant to shine, as children do. We were born to make manifest the
glory
> of God that is within us. It's not just in some of us; it's in everyone.
And
> as we let our own light shine, we unconsciously give other people
permission
> to do the same. As we are liberated from our own fear, our presence
> automatically liberates others."-Mariann Williamson
> ----- Original Message -----
> From: "Dasha Radford" <dasha95@xxxxxxxxx>
> To: <bksvol-discuss@xxxxxxxxxxxxx>
> Sent: Monday, June 04, 2012 12:16 PM
> Subject: [bksvol-discuss] Re: Just a thank you
>
>
> I think I would tend to agree with you there. Bookshare has sometimes
been
> the only thing that kept me from going completely insane both last year
and
> this year. Usually take a book with me when I end up in the hospital
simply
> because I want to distract myself or slight correction be distracted.
> Particularly my first week trapped inside the hospital being poked with
> needles early in the morning and then being awake for about 2 1/2 hours
> before food services decided to bring breakfast in I would usually find
> something to read. Thanks bookshare and all you volunteers who kept many
> people from going bonkers in terrible situations or giving us a release.
I
> am a new volunteer and I hope that my work once I truly get started is as
> wonderful as yours. I must say that having lots of time on your hands
> certainly gives you a chance to proof read without changing anything in
> books even if you're not a volunteer.
> I intend taking a book with me to my doctors appointment on Wednesday.
What
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