[bksvol-discuss] Re: Just a thank you
- From: Larry Lumpkin <llumpkin@xxxxxxxxxxxxx>
- To: dasha95@xxxxxxxxx, bksvol-discuss@xxxxxxxxxxxxx, "bksvol-discuss@xxxxxxxxxxxxx" <bksvol-discuss@xxxxxxxxxxxxx>,
- Date: Tue, 05 Jun 2012 08:38:37 -0500
Hi Dasha. Susan and I are in our mid '60's and both wish you our best.
On Tue, 5 Jun 2012 08:24:26 -0400, Dasha Radford wrote:
>Cindy,
>I'm 16 as of last September. Diagnosed January 6, 2012 tomorrow will be five
>months since I went into the hospital and about the week after that will be
>when I was able to finally leave the hospital. I have chronic myeloid
>Leukemia.
>As the name implies it is indeed chronic. Most of the time we've referred to
>it
>as CML. I am one of about 3.5% of all childhood leukemia cases with it. I was
>diagnosed in January of this year as I said earlier and I only take one drug
>something called sprycel. This is a targeted chemotherapy. Rather than one of
>the broad spectrum chemotherapeutic drugs that have some more obvious side
>effects such as hair loss and the like. With this type of leukemia I can not
>achieve a cure but can achieve remission I'm already ahead of schedule
>Quite frankly I would like to see more historical fiction and fantasy books in
>there in the collection. It's rather interesting also to note that a lot of
>people who proofread/submit the books oftentimes don't put whether it belongs
>to the series even if it does. And it's also very difficult to look through
>the
>whole listing to try to figure out what belongs together if they're not
>already
>together.
>Sent from my iPhone
>On Jun 5, 2012, at 3:47 AM, Cindy <popularplace@xxxxxxxxx> wrote:
>There are people who enjoy scanning books for children and/or teens and
>preteens and I and some other really like proofing them.
>Wishing you all the best.
>Cindy
>From: Dasha Radford <dasha95@xxxxxxxxx>
>To: "bksvol-discuss@xxxxxxxxxxxxx" <bksvol-discuss@xxxxxxxxxxxxx>
>Sent: Monday, June 4, 2012 9:32 AM
>Subject: [bksvol-discuss] Re: Just a thank you
>TVs in hospitals. Boreing! Particularly on the pediatric ward. All you could
>get was music and news. And right at that point I needed something that was a
>whole lot worse than what I was going through to even put mine into
>perspective
>considering the way I was told. I'm in and out more now I've only had that one
>week. But that one week was the longest of my life. Bookshare and NLS have
>kept
>me in reading material since the leukemia diagnosis. It's funny in the
>hospital
>now going between seeing a Dr. reading talking to another person reading and
>then finally leaving about three or four hours later. Seeing so many doctors
>my
>first and hopefully only week in the hospital on the inpatient pediatric
>cancer
>ward got to be more than a little bit mind numbing after while believe me.
>DR
>Sent from my iPhone
>On Jun 4, 2012, at 12:21 PM, "Dornetta" <dornetta@xxxxxxxxx> wrote:
>>Dasha,
>>I completely understand what you are saying. When I first lost my sight and
>>was in the hospital for long stretches of time, I knew nothing about
>>bookshare and therefore was forced to look or in my case listen to TV which
>>was so mind numbing!! Oh how it would have been so much nicer if I could
>>have read a book that I enjoyed...NLS provided some relief but the selection
>>was from a random list.
>>Netta
>>"Our deepest fear is not that we are inadequate. Our deepest fear is that we
>>are powerful beyond measure. It is our light, not our darkness that most
>>frightens us. We ask ourselves, Who am I to be brilliant, gorgeous,
>>talented, fabulous? Actually, who are you not to be? You are a child of God.
>>Your playing small does not serve the world. There is nothing enlightened
>>about shrinking so that other people won't feel insecure around you. We are
>>all meant to shine, as children do. We were born to make manifest the glory
>>of God that is within us. It's not just in some of us; it's in everyone. And
>>as we let our own light shine, we unconsciously give other people permission
>>to do the same. As we are liberated from our own fear, our presence
>>automatically liberates others."-Mariann Williamson
>>----- Original Message -----
>>From: "Dasha Radford" <dasha95@xxxxxxxxx>
>>To: <bksvol-discuss@xxxxxxxxxxxxx>
>>Sent: Monday, June 04, 2012 12:16 PM
>>Subject: [bksvol-discuss] Re: Just a thank you
>>I think I would tend to agree with you there. Bookshare has sometimes been
>>the only thing that kept me from going completely insane both last year and
>>this year. Usually take a book with me when I end up in the hospital simply
>>because I want to distract myself or slight correction be distracted.
>>Particularly my first week trapped inside the hospital being poked with
>>needles early in the morning and then being awake for about 2 1/2 hours
>>before food services decided to bring breakfast in I would usually find
>>something to read. Thanks bookshare and all you volunteers who kept many
>>people from going bonkers in terrible situations or giving us a release. I
>>am a new volunteer and I hope that my work once I truly get started is as
>>wonderful as yours. I must say that having lots of time on your hands
>>certainly gives you a chance to proof read without changing anything in
>>books even if you're not a volunteer.
>>I intend taking a book with me to my doctors appointment on Wednesday. What
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